Raising Awareness for Lyla’s Law: Help Us Protect Children’s Lives

Join the Family Fun Day in Memory of Lyla

To honour Lyla and raise vital funds for Breakthrough T1D UK, a special Family Fun Day will take place:

Date: Sunday 10th August 2025
Time: 12pm to close
Venue: The Goodfellowship Inn, Cottingham Road, Hull, HU5 4AT.

Activities include:

Chocolate board
Tombola
Raffles (KWL is proud to be supporting with donated prizes)
Auction
Entertainment by The Society of M.I.C.E and special guests.

Bring friends, family, and colleagues – your support is what matters most. Donations of raffle prizes or any other assistance are gratefully welcomed.

Supporting an Important Cause

At KWL, we believe in supporting causes that make a real difference in our community. We recently received an emotional appeal from a local father, and with his permission, we’re sharing his family’s story to support the #LylasLaw campaign and to raise awareness of the urgent need for routine Type 1 Diabetes testing in children.

Why Lyla’s Story Matters

Lyla was a bright, caring, and lively two-year-old girl – a child who loved dancing, counting, and bouncing on her trampoline. On 3rd May 2025, Lyla tragically passed away in her sleep, less than 16 hours after visiting her GP for symptoms that included:

More frequent wet nappies
Lethargy and fatigue (falling asleep at the appointment)
Loss of appetite but very thirsty
Vomiting multiple times (including at the surgery)
Sudden weight loss
Lack of energy, quietness, and not talking.

Despite these concerning signs, Lyla was diagnosed with tonsillitis and sent home with antibiotics and paracetamol. Tragically, her underlying Type 1 Diabetes was missed. She developed Acute Diabetic Ketoacidosis (DKA) and a gastrointestinal bleed – complications that proved fatal.

What Went Wrong? – and Why Change Is Needed

Children, especially the very young, often can’t explain how they feel. Lyla’s parents urged her doctors to investigate further, but a simple urine test wasn’t performed – something that could have revealed high ketone levels pointing to DKA. Subsequent blood tests during resuscitation showed Lyla’s levels were more than twice the normal limit.

Sadly, Lyla’s experience isn’t unique. Hundreds of families report similar missed diagnoses, often resulting in children being hospitalised in critical condition – sometimes too late. Of over 130 parents contacted by Lyla’s father, only two said their child’s diabetes was picked up at the first GP appointment. Most received help only after reaching life-threatening stages.

What Is Lyla’s Law?

Lyla’s Law is a campaign to mandate routine screening for Type 1 Diabetes (urine and/or blood tests) in babies, toddlers, and children during medical visits, especially when symptoms suggest it. The law also calls for:

Increased awareness and adherence to existing NICE guidelines among healthcare professionals
Better information in the NHS “Red Book” for parents
More education about the “4 T’s” of Type 1 Diabetes (Toilet, Thirsty, Tired, Thinner)
Antibody testing to identify high-risk children early.

The goal is to ensure no family suffers the same preventable loss and every vulnerable child is protected.

What Can You Do?

Read and share Lyla’s story with colleagues, friends, and family.
Support the #LylasLaw petition urging the government to mandate routine Type 1 Diabetes screening for children: Sign the Petition
Attend the Fun Day to show solidarity, raise awareness, and fundraise for Type 1 Diabetes research and advocacy.
Be aware of the symptoms: Wet nappies, excessive thirst, tiredness, weight loss, vomiting, and sudden changes in energy or appetite in children warrant urgent medical attention and diabetes screening.

Lyla’s Legacy

Lyla’s parents hope that sharing her story will save lives and bring about change. No family should ever lose a child through missed diagnosis of a treatable condition. Let’s help make Lyla’s legacy one of hope, action, and protection for every child.